AB0916-PARE KNOWLEDGE OF DISEASE, DIAGNOSIS, ADHERENCE AND IMPACT OF RESEARCH IN PATIENTS WITH INFLAMMATORY ARTHRITIS

Background: The diagnosis and treatment of inflammatory arthritis has been transformed largely by the development drugs that target specific molecules immune system. However, these changes have increased complexity mechanisms disease, its patients understanding. Patient education is needed in this area to facilitate decision making strong patient-partnerships research. Objectives: aim study was examine level understanding need for patient-partnership Methods: An online anonymous survey addressed questions about diagnosis, routine tests, medications how they work, medication adherence, disease flare, heredity, pregnancy, patient involvement Results: There were 1,873 respondents, 1416 which had (IA)-RA (65.8%) PsA (34.2%). They predominantly female (RA 86%, 85 %), aged 55±13 50±12. Less than 35% an diagnostic what measured implication with 75.5% also concerned heredity. a high treat (72.9%). Adherence very (>87%), main reasons stopping without advice their clinician, ‘feeling better’ ‘side effects’ however significant proportion (69.9%) reported disease-flare following cessation medication. Patients childbearing age (69%) reduced chances getting pregnant, only 8% believing safe take during pregnancy. Finally, 9% ever asked participate research study. Conclusion: This demonstrates stronger clinicians researchers relation engagement research, create platform where can meaningful input future studies. Acknowledgements: We wish thank all who contributed Disclosure Interests: Mary Canavan: None declared, Viviana Marzaioli: Alex Donnelly: Siobhan Wade: Alexander Fraser: Tim O’Sullivan: Sinead Harney: Arthritis Ireland: Douglas Veale Speakers bureau: Abbvie, Janssen, Novartis, MSD, Pfizer, UCB, Consultant of: Grant/research support from: Ursula Fearon UCB